An immune deficiency is a huge burden. Not only with regard to the physical limitations, but also in terms of coping psychologically.
Furthermore, this does not only apply to the person affected by an immunodeficiency. The relatives also often require competent advice and assistance.
The following patient organisations are important sources of information for the affected persons and their families.
Swiss Association for Congenital Immunodeficiencies (SVAI)
International Patient Organisation for Primary Immunodeficiencies (IPOPI)